We are the experts when it comes to our illnesses

Endohope

I tend to forget sometimes that despite how awful I feel, I look pretty normal to the outside world. Somehow despite feeling generally unwell from day-to-day I am able to hide how poorly I am feeling behind a normal face that everyone recognises. It sounds like a great problem to have, but it is one of the ongoing dichotomies that someone like me with an long-term illness faces. Standing on the line between chronic illness and perceived wellness.

This sentiment of visual normality that floats around me all day might go someway to explain the numerous comments and platitudes I hear from people about how I could cope with my illness better. As when I start to talk about how it effects me, others around me feel that it’s appropriate to share their ideas about improving my lot as if their suggestions could improve my quality of life…

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